This week, we explore the latest findings, including the potential benefits of medications like metformin, the challenges faced in rehabilitation, and emerging research that connects COVID-19’s impact to myalgic encephalomyelitis/chronic fatigue syndrome.
It seems there is little financial investment into finding the causes (which I realise is not simple), therefore they are just focusing on available treatments in the hope it may help but will not really offer insights into the mechanisms of the disease.
There also seems to be little in the way of increasing the medical professions knowledge of long Covid.
I initially believed that long Covid would be the breakthrough for me/cfs treatment/cure. Now I’m thinking long Covid will be put in the ‘I can’t see any issues in your bloods so you are fine, you just need to exercise’ basket.
It’s so sad for the sufferers.
I am so much better thankfully but the uncertainty of whether I’m fully recovered, if I got Covid again, what would be the impact, is my daughters future altered by her long Covid are all very concerning?
The world has moved on from Covid but for some, it’s not that simple.
I wonder if the study on mast cells was more centered around Mastocytosis and not MCAS itself. Tryptase testing almost always comes back empty with MCAS. Diagnosis usually requires more rare testing that only a small number of extremely specialized doctors seem to know about.
Yes, that makes a lot of sense. And from my understanding, they’re not at all the same thing. My doctor is trying to get a special stain done on some biopsies that were taken of my esophagus. He tells me that stain is the most definitive diagnosis for MCAS.
This edition made me feel pretty deflated.
It seems there is little financial investment into finding the causes (which I realise is not simple), therefore they are just focusing on available treatments in the hope it may help but will not really offer insights into the mechanisms of the disease.
There also seems to be little in the way of increasing the medical professions knowledge of long Covid.
I initially believed that long Covid would be the breakthrough for me/cfs treatment/cure. Now I’m thinking long Covid will be put in the ‘I can’t see any issues in your bloods so you are fine, you just need to exercise’ basket.
It’s so sad for the sufferers.
I am so much better thankfully but the uncertainty of whether I’m fully recovered, if I got Covid again, what would be the impact, is my daughters future altered by her long Covid are all very concerning?
The world has moved on from Covid but for some, it’s not that simple.
Amy and Brandon, thank you for your takes on the mast cell study. I think they found all 24 long haulers who don’t have MCAS 🙄
Probs!
I wonder if the study on mast cells was more centered around Mastocytosis and not MCAS itself. Tryptase testing almost always comes back empty with MCAS. Diagnosis usually requires more rare testing that only a small number of extremely specialized doctors seem to know about.
Yes, that makes a lot of sense. And from my understanding, they’re not at all the same thing. My doctor is trying to get a special stain done on some biopsies that were taken of my esophagus. He tells me that stain is the most definitive diagnosis for MCAS.
Yeah, from what I know as well, they aren’t the same. I hadn’t heard of the stain testing. I want to learn more about it now, thank you for sharing!
Good points, Keisha