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Amy - The Tonic's avatar

Wow - you were right about the EBV article. This is pretty huge.

“Patients with ME/CFS may present with insulin resistance, increased blood insulin levels, high waist circumference, high triglycerides, and hypocortisolism” - I am experiencing all of these things 3.5 years into LC (I’ve also been diagnosed with ME/CFS). My EBV reactivation numbers have been off the charts the whole time. My ID doc has me on daily valacyclovir and my endo has me on metformin for the pre-diabetes.

As for the newsletter name, it’s funny you should ask. I’m considering a rebrand myself that is broader than LC and ME/CFS, though I am getting a lot of new subscribers each week and I worry that a name change might make me harder to find. I think since so many with non-LC post-viral illnesses are hanging their hat on LC research answering their prayers, maybe we should both stick with our names for now.

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Brandon's avatar

Thank you for the comment, Amy!

Yes, agreed that first article is super interesting. I believe it was written by someone with ME/CFS. EBV is a real pain!

Regards to your second point, I follow that line of thinking, also don't want people who have been reading the newsletter for a while to get confused if i do the name change suddenly.

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Ravi Veriah Jacques's avatar

I’d keep the name ‘Long Covid Weekly’ - it’s a great name, and you already do a good job of covering not just Long Covid but other post infection chronic illnesses

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Brandon's avatar

Thanks for the input, Ravi!

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Michael's avatar

I like the idea of a name change, tho' it might make it harder to find you. Tough decision!

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Brandon's avatar

Think i will keep it the same for now maybe down the road...

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Ylan's avatar

Thank you for this excellent summary. I am experiencing cognitive dysfunction and can not process full articles. In the case of the EBV one, I will do a deep dive, despite my weary brain. Before my LC diagnosis, I was diagnosed with EBV active, Lyme, Cytomegalovirus, mold illness and a high lead count. I will be doing research on herbal antivirals, given none are currently available for our condition. Of course valacyclovir is possible. I will ask my doctor.

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