Wow - you were right about the EBV article. This is pretty huge.
“Patients with ME/CFS may present with insulin resistance, increased blood insulin levels, high waist circumference, high triglycerides, and hypocortisolism” - I am experiencing all of these things 3.5 years into LC (I’ve also been diagnosed with ME/CFS). My EBV reactivation numbers have been off the charts the whole time. My ID doc has me on daily valacyclovir and my endo has me on metformin for the pre-diabetes.
As for the newsletter name, it’s funny you should ask. I’m considering a rebrand myself that is broader than LC and ME/CFS, though I am getting a lot of new subscribers each week and I worry that a name change might make me harder to find. I think since so many with non-LC post-viral illnesses are hanging their hat on LC research answering their prayers, maybe we should both stick with our names for now.
Yes, agreed that first article is super interesting. I believe it was written by someone with ME/CFS. EBV is a real pain!
Regards to your second point, I follow that line of thinking, also don't want people who have been reading the newsletter for a while to get confused if i do the name change suddenly.
I’d keep the name ‘Long Covid Weekly’ - it’s a great name, and you already do a good job of covering not just Long Covid but other post infection chronic illnesses
Thank you for this excellent summary. I am experiencing cognitive dysfunction and can not process full articles. In the case of the EBV one, I will do a deep dive, despite my weary brain. Before my LC diagnosis, I was diagnosed with EBV active, Lyme, Cytomegalovirus, mold illness and a high lead count. I will be doing research on herbal antivirals, given none are currently available for our condition. Of course valacyclovir is possible. I will ask my doctor.
Wow - you were right about the EBV article. This is pretty huge.
“Patients with ME/CFS may present with insulin resistance, increased blood insulin levels, high waist circumference, high triglycerides, and hypocortisolism” - I am experiencing all of these things 3.5 years into LC (I’ve also been diagnosed with ME/CFS). My EBV reactivation numbers have been off the charts the whole time. My ID doc has me on daily valacyclovir and my endo has me on metformin for the pre-diabetes.
As for the newsletter name, it’s funny you should ask. I’m considering a rebrand myself that is broader than LC and ME/CFS, though I am getting a lot of new subscribers each week and I worry that a name change might make me harder to find. I think since so many with non-LC post-viral illnesses are hanging their hat on LC research answering their prayers, maybe we should both stick with our names for now.
Thank you for the comment, Amy!
Yes, agreed that first article is super interesting. I believe it was written by someone with ME/CFS. EBV is a real pain!
Regards to your second point, I follow that line of thinking, also don't want people who have been reading the newsletter for a while to get confused if i do the name change suddenly.
I’d keep the name ‘Long Covid Weekly’ - it’s a great name, and you already do a good job of covering not just Long Covid but other post infection chronic illnesses
Thanks for the input, Ravi!
I like the idea of a name change, tho' it might make it harder to find you. Tough decision!
Think i will keep it the same for now maybe down the road...
Thank you for this excellent summary. I am experiencing cognitive dysfunction and can not process full articles. In the case of the EBV one, I will do a deep dive, despite my weary brain. Before my LC diagnosis, I was diagnosed with EBV active, Lyme, Cytomegalovirus, mold illness and a high lead count. I will be doing research on herbal antivirals, given none are currently available for our condition. Of course valacyclovir is possible. I will ask my doctor.